domingo, 7 de octubre de 2018

WHY IS THE WORLD NOT TREATING A TREATABLE DISEASE LIKE LYMPHEDEMA/LYMPHOEDEMA - TURNING A BLIND EYE TO ELEPHANTIASIS


Millions of people across the world suffer a debilitating, painful and potentially life-threatening disease called Lymphedema. The progressive inflammation and swelling causes pain, discomfort, skin complications and ultimately, severe deformity and disability, leaving men, women and children across the world unable to work, care for their families and lead normal lives.
But the discovery six decades ago, of a physical therapy for the reduction and maintenance of this disease, seemed it was about to change it all. Not only was it an inexpensive treatment, in comparison to expensive drug treatments needed for many other chronic sicknesses, but it was also a powerful means to give back quality of life to patients. With an average of only two weeks of intensive physical therapy, and two compression garments per year, it was possible to reduce the limb size of this inflammatory disease, and even halt the progression towards severe disability.
No time had to be wasted regarding chronic Lymphedema, recognizing that the populations most at risk of this disease, are those least able to afford treatment, and it had sense that international health organizations immediately started treatment programs, and distributing compression garments to all those affected. It should have been the step ahead, for treatment at a global level of this disease, an effective treatment for a tragic and completely preventable outcome, "elephantiasis", also called Stage-4-Lymphedema. It is very important to understand that all non-reversible Stage-4-elephantiasis, first started off as an initial Stage-1-reversible lymphedema.
If Only we hadn’t turn a blind eye, to the treatment of a tragic disease that has plagued mankind for centuries. Now 60 years later, the majority of people who are affected by lymphedema in the world, as many as 300 million, are slowly progressing towards Stage Elephantiasis, and permanently disabledThe present situation is unique in medicine, whilst the majority of chronic disease are given the life long medication and health assistance they need, the greater part of patients suffering from lymphedema, are undertreated or not treated at all.

In short, Stage Elephantiasis is not a rare clinical condition, but has stuck around because medicine and many national health care systems and policies have looked the other way, the easy way out for not funding the necessary services and compression garments for the treatment of lymphedema, which is why Elephantiasis continues to persist worldwide. This only shows that the world has failed, and continues to fail, to treat a treatable disease.
Reference:


Cost of a lymphedema treatment mandate-10 years of experience in the Commonwealth of Virginia
Complete Decongestive Therapy Treatment for lymphedema and its relationship with Patients Psychological and Physical characteristics:
The Psycho-Social Impact of Lymphedema
Effective treatment of lymphedema of the extremities.
Conservative treatment of lymphoedema of the limbs.
The physical treatment of upper limb edema.
Lymphatic drainage of the upper limb. Substitution lymphatic pathways
Phlebolymphedema–A Common Underdiagnosed and Undertreated Problem in the Wound Care Clinic
Why aren’t we curing the world’s most curable diseases?


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LYMPHEDEMA CAMPAIGN
 


For global awareness it is being asked that the 
WHO - WORLD HEALTH ORGANIZATION
name: 
"LYMPHEDEMA - AWARENESS & CURES"
as its World Health Day campaign - 2018

  

  KATHY BATES
LYMPHEDEMA EMBASSADOR


SIGN THE PETITION HERE


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