BEWARE AND WATCH OUT FOR NEW MODIFIED TERMINOLOGY AND ABRIVIATIONS DISCRIBING LYMPHEDEMA TREATMENT - MEDICAL DEFINITIONS - LMPHEDEMA/LYMPHOEDEMA GLOSSARY OF TERMS

Due to new terminologies and abbreviations that are emerging in the field of lymphedema treatment, it is necessary to take note of the new vocabulary used by some international lymphedema organizations to denominate the treatment for lymphedema. 

Whilst the International Society of Lymphology and Specialized Societies continue to use the following terms and abbreviations to designate treatment: Combined physical therapy (CPT), Complete Decongestive Therapy (CDT) or Complex Decongestive Physiotherapy (CDP), which all describe the same Gold Standard treatment backed by long-standing experience, some new organizations are now using the following modified term to describe treatment: “Decongestive Lymphatic Therapy (DLT)”.

It should be noted that there is a big difference between these descriptions, for they are not the same and they are not substitutive. While the traditional abbreviations and terms (CPT, CDT or CDP) refer to the need for a combination of all elements that are part of the Conservative Treatment, the new modified abbreviation and term DLT, refers to treatment in a general way, without strictly specifying the need of all the elements included in the traditional Conservative Therapy. 

The new abbreviation and term “Decongestive Lymphatic Therapy (DLT)”, totally excludes the words Combined, Complete or Complex. 

When using this new substitute, it designates and represents many variations of therapies other tan the Conservative Treatment, including treatment formed by a single element, such as the use of compression pump devices (IPC) alone. The term and abbreviation DLT appears thus as an economical alternative to replace the recognized conservative lymphedema treatment, so as to able to include more cheaper treatment options, such as self-treatments (self-drainage / self-bandaging), and with it for the omission of Manual Lymph Drainage (DLM) therapy conducted by specialized physiotherapists.

SUMMARY OF TERMINOLOGY AND ABBREVIATIONS USED TO DESCRIBE LYMPHEDEMA TREATMENT

Terminology used by the ISL (International Society of Lymphology):

• CPT -  Combined physical therapy
• CDT - Complete Decongestive Therapy
• CDP - Complex Decongestive Physiotherapy
• MLD - Manual Lymph Drainage
• IPC  - Intermittent Pneumatic Compression

New terminology not used by the ISL (International Lymphology Society):

• DLT - Decongestive Lymphatic Therapy
• SLD - Simple Lympahtic Drainage (Self applied Lymph Drainage)
• MLLB - Multi-layer Lymphedema Bandaging
• MODIFIED MLLB - Modified Multi-layer Bandaging (Self applied Multi-layer bandaging)
• MODIFIED CDT - Modified Complete Decongestive Therapy

What does the Conservative Gold Standard Treatment include:

     1.   Skin care.

2.   Motion exercises.

3.   Manual lymph drainage-MLD ( conducted by specialized physiotherapists).

4.   Compression Pumps (it´s optional and can only be used if accompanied by MLD conducted by specialized physiotherapists).

5.   Multi-layered bandage wrapping (conducted by specialized physiotherapists).

6.   Low-stretch compression garments (custom made and specific for lymphedema).

What does the new modified term “Decongestive Lymphatic Therapy (DLT)” include, or exclude:

1.   It excludes the keywords: Combined, Complete or Complex.

2.   It can represent treatment consisting of one sole element, as the use of Pneumatic Pumps (IPC) alone, without MLD conducted by specialized physiotherapists. This can have serious side-effects for patients.

3.    It can represent treatment consisting of simple or modified versions of treatments. These havn´t  sufficient scientific evidence, and can lead to irreversible problems on the long run.

4.    It can represent treatment that suppress for the reduction of edemas, bandaging conducted by specialized physiotherapists, and incorporate patient self-administrated Multi-layer Bandaging (MODIFIED MLLB). This can cause severe complications for patients.

5.    It can represent treatment that suppress Manual lymphatic drainage (MLD) conducted by specialized physiotherapists, and incorporate Simple Lymphatic Drainage (SLD), a patient serf-administrated version of MLD. Although some say that SLD is said to be of psychological and symptomatic value to some patients, its efficacy as treatment for lymphedema does not have sufficient scientific evidence, and remains to be proven. 

References:

Consensus Document of the IDL- International Society of Lymphology

http://www.u.arizona.edu/~witte/2013consensus.pdf

(consulted 30/05/2017)

Articles which may also interest you: 
(Click on the texts)

• WHY IS ELEPHANTIASIS A FORGOTTEN AND NEGLECTED DISEASE

• IS THERE DISTRESS ASSOCIATED TO UNDER-TREATMENT OF LYMPHEDEMA - PSYCHOLOGICAL CONSEQUENCES OF LYMPHEDEMA

• WHY IS THE WORLD NOT TREATING A TREATABLE DISEASE LIKE LYMPHEDEMA. TURNING A BLIND EYE TO ELEPHANTIASIS

• WHAT IS THE BEST TREATMENT FOR LYMPHEDEMA

• IS LYMPHEDEMA DISABLING - INABILITY TO WORK AND DISABILITY RECOGNITION 

• INTERNATIONAL AWARENESS CAMPAIGN TO PROMOTE CORRECT TREATMENT FOR LYMPHEDEMA

• ELEPHANTIASIS IS NOT ONLY LYMPHATIC FILARIASIS 

• CAMPAIGN TO PREVENT CHILD ELEPHANTIASIS DUE TO PRIMARY AND SECONDRY LYMPHEDEMA 

• BEWARE WITH NEW TERMINOLOGY DISCRIBING LYMPHEDEMA TREATMENT

• WHAT KIND OF DOCTOR TREATS LYMPHEDEMA/LYMPHOEDEMA - WHAT TYPE OF DOCTOR IS SPECIALIZED IN LYMPHATIC DYSFUNCTION - WHICH MEDICAL SPECIALITIES ARE RELATED TO LYMPHEDEMA

• FAST TRACK SOCIAL SECURITY DISABILITY RECOGNITION FOR CHILDREN WITH LYMPHEDEMA

• INTERMITTENT PNEUMATIC COMPRESSION (IPC) PUMP DEVICES. SERIOUS SIDE EFFECTS POR LYMPHEDEMA

• BEST PRACTICE PROTOCOL GUIDE FOR LYMPHOEDEMA (in Galician)

• A LYMPHEDEMA STORY - DOCTOR KENNETH GERSHENGORN AND THE MAUREEN DIGAN CLINICAL CASE

• WHY IS A BUTTERFLY THE SYMBOL FOR LYMPHEDEMA

• LYMPHEDEMA - INTERNATIONAL DISEASE CODING AND CLASSIFICATION

• WHAT DOES INTERMITTENT PNEUMATIC COMPRESSION PUMP THERAPY (IPC) DO, AND DOES NOT DO FOR LYMPHEDEMA. 

• WHAT IS PHLEBOLYMPHEDEMA.

• SPANISH LYMPHEDEMA ASSOCIATIONS – UPDATED LIST – PATIENT LYMPHEDEMA ASSOCIATIONS OF SPAIN – SPANISH NATIONAL FEDERATION OF LYMPHEDEMA ASSOCIATIONS

CLICK ON THE TEXTS 
TO SEE  LYHMPHEDEMA INCIDENCE 
AND PREVALENCE

CAMPAIGN 

For global awareness it is being asked that the 

WHO - WORLD HEALTH ORGANIZATION, 

name: 

"LYMPHEDEMA - AWARENESS & CURES"

as the World Health Day campaign 

  

  KATHY BATES

LYMPHEDEMA EMBASSADOR

SIGN THE PETITION HERE