martes, 17 de noviembre de 2015

MILROY'S DISEASE / RARE DISEASE INFORMATION / BIRTH RELATED PRIMARY LYMPHEDEMA /PRIMARY LYMPHOEDEMA IN CHILDREN / INCIDENCE-PREVALENCE / EPIDEMIOLOGY / NUMBER OF AFFECTED POPULATIONS/ ESTIMATING THE POPULATION BURDEN


BIRTH RELATED LYMPHEDEMA PREVALENCE 

224,558
201,699
   52,246
   39,607
   32,063
   30,500
       26,404
       23,843
       23,720
 21,275
18,723
15,390
14,640
14,054
13,670
13,643
12,725
12,454
Congo, DROC
10,994
10,917
10,892
10,377
        9,911
  8,431
        8,097
Myanmar (Burma)
        7,994
        7,836
        7,698
        7,607
        7,198
        6,686
        6,435
        6,417
        6,183
        5,798
        5,555
        5,490
        5,425
        5,149
        5,023
        4,854
        4,806
        4,525
        4,523
        4,437
        4,088
        4,081
        4,037
        4,009
        3,950
        3,882
        3,817
        3,594
        3,566
        3,449
        3,442
        3,435
        3,234
        3,174
        2,900
        2,788
        2,789
        2,713
        2,622
        2,452
        2,421
        2,414
        2,233
        2,184
        2,174
        2,143
        2,126
        1,879
        1,874
        1,825
        1,798
        1,786
        1,779
        1,760
        1,751
        1,738
        1,756
        1,700
        1,681
        1,660
        1,633
        1,582
        1,577
         1,563
         1,518
         1,517
         1,409
         1,397
         1,377
South Sudan
         1,377
         1,325
         1,312
         1,300
         1,227
         1,187
         1,184
         1,169
         1,067
         1,064
         1,049
         1,043
         1,033
         1,032
         1,012
         1,000
            930
            913
            907
            901
            900
            864
            851
            835
            833
            765
            745
            739
            717
            715
            715
            705
Congo, ROC
            674
            640
            621
            555
            593
            579
            568
            557
            546
            542
            532

Ref:

https://rarediseases.org/rare-diseases/hereditary-lymphedema/



angiopediatria / pediatric vascular abnormalies




INTERESTING ARTICLES




BEWARE WITH NEW TERMINOLOGY DISCRIBING LYMPHEDEMA TREATMENT



WHICH MEDICAL SPECIALISTS SHOULD DIAGNOSE AND ARE RELATED TO LYMPHEDEMA


FAST TRACK SOCIAL SECURITY DISABILITY RECOGNITION FOR CHILDREN WITH LYMPHEDEMA



INTERMITTENT PNEUMATIC CPMPRESSION (IPC) PUMP DEVICES
SERIOUS SIDE EFFECTS POR LYMPHEDEMA 


BEST PRACTICE PROTOCOL GUIDE FOR LYMPHOEDEMA (in Galician)




THE VATICAN AND CANONIZATION DUE TO THE MIRACULOUS CURE OF A PRIMARY LYMPHEDEMA




WHY A BUTTERFLY IS THE SYMBOL FOR LYMPHEDEMA



LYMPHEDEMA - INTERNATIONAL DISEASE CODING AND CLASSIFICATION



WHAT DOES INTERMITTENT PNEUMATIC COMPRESSION PUMP THERAPY (IPC) DO AND NOT DO FOR LYMPHEDEMA. ( see Page 8 for the important Conclusions)



WHAT IS PHLEBOLYMPHEDEMA




LYMPHEDEMA INCIDENCE AND PREVALENCE










NEW CAMPAIGN FOR 2018
 


For global awareness it is being asked that the 
WHO - WORLD HEALTH ORGANIZATION
name: 
"LYMPHEDEMA - AWARENESS & CURES"
as its World Health Day campaign - 2018

  

  KATHY BATES
LYMPHEDEMA EMBASSADOR


SIGN THE PETITION HERE








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