sábado, 28 de marzo de 2015

MARCH 6 / LYMPHEDEMA AWARENESS DAY / 2015 / GALICIAN LYMPHEDEMA ASSOCIATION (SPAIN)

On the 6th of March, Lymphedema Awareness Day was celebrated in all the Provinces and Reagions of Spain, and internationally in many countries.

In Galicia (North-West Autonomous Region of Spain) the Event took place in Vilagarcia de Arousa (Headquarters of the Galician Association of Lymphedema), where the Manifesto of the Spanish National Federation of Lymphedema-fedeal was read, and in which some of the following  requests are included:

  • The creation of real Multidisciplinary  Lymphedema Units in all Public Hospitals.

  • Training of public  health professionals in the management of lymphedema.

  • Equal and non-discriminatory access to Specialized Units for all patients alike, be they Primary or Secondary Lymphedema.

  • Supply of free Orthoprotesic Lymphedema Garments through the National Social Security, as they are an essential for lymphedema, as part of treatment for a chronic and progressive disease.

  • Supply of skin ointments through the Social Security, as they are indispensable to avoid serious complications, and for the maintenance of the disease.

  • Access to regular Clinical Maintenance Treatment  through the Public Health System. Many patients have to fund their own treatments.

  • Publication of a common Clinical Practice Guideline for the entire national territory, following current international consensus, and in cooperation with the National Spanish representation, of Lymphedema patients -FEDEAL.


  • Setting standards for evaluating and the recognition of impairment and disability due to lymphedema by the Spanish Health System and Administrations.






The event was attended by a big audience, and with the participation of public political figures and representatives of various organizations.



INTERESTING ARTICLES




BEWARE WITH NEW TERMINOLOGY DISCRIBING LYMPHEDEMA TREATMENT



WHICH MEDICAL SPECIALISTS SHOULD DIAGNOSE AND ARE RELATED TO LYMPHEDEMA


FAST TRACK SOCIAL SECURITY DISABILITY RECOGNITION FOR CHILDREN WITH LYMPHEDEMA



INTERMITTENT PNEUMATIC CPMPRESSION (IPC) PUMP DEVICES
SERIOUS SIDE EFFECTS POR LYMPHEDEMA 


BEST PRACTICE PROTOCOL GUIDE FOR LYMPHOEDEMA (in Galician)



VATICAN AND CANONIZATION DUE TO THE MIRACULOUS CURE OF A PRIMARY LYMPHEDEMA




WHY A BUTTERFLY IS THE SYMBOL FOR LYMPHEDEMA



LYMPHEDEMA - INTERNATIONAL DISEASE CODING AND CLASSIFICATION



WHAT DOES INTERMITTENT PNEUMATIC COMPRESSION PUMP THERAPY (IPC) DO AND NOT DO FOR LYMPHEDEMA. ( see Page 8 for the important Conclusions)



WHAT IS PHLEBOLYMPHEDEMA




LYMPHEDEMA INCIDENCE AND PREVALENCE










NEW CAMPAIGN FOR 2018
 


For global awareness it is being asked that the 
WHO - WORLD HEALTH ORGANIZATION
name: 
"LYMPHEDEMA - AWARENESS & CURES"
as its World Health Day campaign - 2018

  

  KATHY BATES
LYMPHEDEMA EMBASSADOR


SIGN THE PETITION HERE







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